The LAF provides funding to survivorship centers located across the country. These groundbreaking centers address the long-term physical and psychological challenges faced by cancer survivors and provide them with the resources they need to live strong. Click on the links below to read more about the cancer survivorship centers currently funded by the LAF.
Cook Children's Medical Center, Life After Cancer Program
Fort Worth, Texas
University of Pennsylvania Cancer Center, Living Well After Cancer Program
Philadelphia, Pennsylvania
University Hospitals of Cleveland, Rainbow Babies & Children's Hospital
Cleveland, Ohio
Dana-Farber Institute, Lance Armstrong Foundation Adult Survivorship Clinic within the Perini Family Survivors' Center
Boston, Massachusetts
Nevada Cancer Institute, Lance Armstrong Foundation Cancer Survivorship Center
Las Vegas, Nevada
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Cook Children's Medical Center
Life After Cancer Program
Fort Worth, Texas
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Lisa Bashore, R.N., C.P.N.P.
Tel: 682-885-2125
Email: lisaba@cookchildrens.org
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The LAF partnered with The Hematology & Oncology Center of Cook Children's Medical Center (CCMC) in 2000 to create the Life After Cancer Program, a flagship pediatric cancer survivorship program which serves a large population of pediatric, adolescent, and young adult cancer survivors. It has become clear to pediatric oncologists that survivors of childhood cancer face a real risk of developing many late effects from their curative treatment, including second cancers, infertility, altered development, and difficulties with interpersonal relationships. The goals of Life After Cancer are to provide comprehensive survivor care, which encompasses neuropsychological assessment and intervention, socioeconomic evaluation and assistance, physical evaluations, participation in institutional research studies, intensive patient and family education, survivor social and emotional support groups, and unique social events for its participants. The program also collaborates with other pediatric survivorship programs and the NCI-sponsored Children's Oncology Group to further research in survivorship. The program recently launched its Living Legacy program with funds from the LAF, which enables newly-diagnosed, economically disadvantaged young men to preserve their future fertility options.
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University of Pennsylvania Cancer Center
Living Well After Cancer Program
Philadelphia, Pennsylvania
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Linda A. Jacobs, Ph.D., R.N.
Tel: 215-615-3371
Email: Linda.jacobs@uphs.upenn.edu
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In 2003, the LAF awarded a grant to the Living Well After Cancer Program, developed as a model of care for adult survivors of cancer. The program is focused on clinical, research, and education efforts and aims to improve the quality of life for cancer survivors by focusing on early intervention, prevention of disease and education. Patients come to the center for evaluations and recommendations regarding their personal risk factors for developing problems after treatment. Then, ongoing program visits focus on health promotion and disease prevention. The clinic is staffed by a multidisciplinary team including nurses, oncologists, a psychologist and other counselors, a nutrition counselor, and subspecialists, all who are kept up to date on the patient's progress. The program also conducts comprehensive research of its patient population which will ultimately help determine the standard of care and improve the quality of life for this growing population of survivors.
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Rainbow Babies, the pediatric component of the University Hospitals of Cleveland's Ireland Cancer Center, provides a strong interdisciplinary approach to patient care with early identification and intervention, advocacy and counsel and education for young cancer survivors, their families, educators and peer groups. With this recent grant from the LAF, the organization has established the center for survivors of childhood cancer to provide support and counseling for cancer survivors from the newborn age to 21. Its programs will follow cancer survivors over time to investigate their issues and needs and identify successful interventions. In addition, the center will create a program for newly diagnosed patients to begin treatment with the support of professionals, educators, coaches and survivors. Rainbow Babies' attention to community, national, and international health care issues helps them to offer a full range of children's services in a compassionate and interdisciplinary care setting.
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Dana-Farber Institute
Perini Family Survivors' Center
Boston, Massachusetts
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Victoria Kennedy
Tel: 617 632 5100
Email: LAFClinic@dfci.harvard.edu
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The Lance Armstrong Foundation Adult Survivorship Clinic within the Perini Family Survivors' Center at the Dana-Farber Cancer Institute will be the first major initiative to systematically understand and tackle the issues of adult survivors. With help from the LAF, the center has launched a multi-disciplinary, full-service adult survivors' clinic focused on bringing the Perini Clinic's incomparable model of research and patient care to bear on the lives of survivors of adult cancers. The vision for the Perini Family Survivors' Center includes a variety of educational and support programs, consultative care in medical subspecialties such as endocrinology, cardiology, gastroenterology, neurology and related testing and screening, surgical subspecialty consultative care in areas such as dermatology and fertility, and genetic counseling. Following the Perini Program model, the LAF Adult Survivorship Clinic will also include an emphasis on providing a range of psychosocial resources for survivors including counseling and neuropsychiatry services. Patients across disease areas that are concluding treatment will be seen by a team of experts focused on survivorship issues, who will ensure that their needs are assessed and responded to appropriately and effectively.
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Nevada Cancer Institute
Lance Armstrong Foundation Cancer Survivorship Center
Las Vegas, Nevada
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Erica Archuleta
Tel: 702-821-0000
Email: earchule@nvcancer.org
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The Nevada Cancer Institute (NVCI) is establishing a world-class comprehensive care facility dedicated to state-of-the-art research and implementation of ground-breaking methods of prevention, detection and treatment of cancer. The Lance Armstrong Foundation Cancer Survivorship Center will be located within the Nevada Cancer Institute's patient and information library. It will contain resource materials, Internet access, translation and interpretation services, navigation services and general support. The resource center will help patients and their families navigate the complicated questions surrounding treatment options and protocols and provide information necessary to help cancer patients from the day of diagnosis. A survivorship coordinator will be dedicated to providing full-time survivorship support, information and services to cancer patients and their families. In addition, the coordinator will have a unique opportunity to work in concert with NVCI's medical researchers to study and determine the long-term effects of cancer survivorship. This resource center, housed in what will soon be the premier cancer treatment and research facility in Nevada, will ensure Nevadans have access to the best survivorship services possible.
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